{"id":12204,"date":"2025-03-11T11:53:55","date_gmt":"2025-03-11T08:53:55","guid":{"rendered":"https:\/\/www.sidra.org\/?post_type=patient_story&p=12204"},"modified":"2025-03-11T12:02:11","modified_gmt":"2025-03-11T09:02:11","slug":"gene-therapy-for-older-children-with-dmd","status":"publish","type":"patient_story","link":"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/","title":{"rendered":"Gene Therapy for Older Children with DMD"},"content":{"rendered":"\n
\n
\n \"Play\"\n Watch Video\n <\/a><\/div>\n<\/div>\n\n\n\n

<\/p>\n\n\n\n

Fahad, a 10-year-old boy, was part of the first cohort of older children to received gene therapy for Duchenne Muscular Dystrophy (DMD) at the Gene Therapy Clinic<\/a> at Sidra Medicine.<\/p>\n\n\n

\n
\"\"<\/figure><\/div>\n\n\n

In late 2024, the age restriction to treat older children with DMD with Elevidys was updated. Sidra Medicine become the first hospital outside of the United States of America, to administer Elevidys gene therapy to children over the age of six.<\/p>\n\n\n\n

Fahad\u2019s mother said: \u201cInitially we were told that there was no cure for this condition given my son\u2019s age, which was devastating. However, after the age restriction for Elevidys had been lifted, it was a huge relief that Fahad\u2019s condition was indeed treatable. This was life changing.\u201d<\/p>\n\n\n\n

She continued: \u201cWe are grateful for the incredible care provided by the entire team at Sidra Medicine, from the medical staff to the support staff, who treated us with the utmost kindness. I would like to extend special thanks to Dr. Tawfeg, Dr. Fawzi, and Dr. Khalid for their exceptional support. It wasn\u2019t just about the medication. With the help of the doctors and nurses, I also learned how to better care for Fahad and manage his condition.\u201d<\/p>\n\n\n\n

The Gene Therapy Clinic at Sidra Medicine directly addresses the urgent needs of children with DMD from across the region. By bringing this lifesaving care closer to home and expanding the age eligibility, we are fostering innovation in DMD treatment and transforming the lives of children with DMD in the Arab region.<\/p>\n","protected":false},"excerpt":{"rendered":"Fahad, a 10-year-old boy, was part of the first cohort of older children to received gene therapy for Duchenne Muscular Dystrophy (DMD) at the Gene Therapy Clinic at Sidra Medicine.","protected":false},"author":4,"featured_media":12206,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"categories":[],"tags":[166928,166930,24231],"class_list":["post-12204","patient_story","type-patient_story","status-publish","has-post-thumbnail","hentry","tag-duchenne-muscular-dystrophy","tag-gene-therapy-clinic","tag-patient-story"],"acf":[],"yoast_head":"\nGene Therapy for Older Children with DMD - Sidra Medicine<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Gene Therapy for Older Children with DMD - Sidra Medicine\" \/>\n<meta property=\"og:description\" content=\"Fahad, a 10-year-old boy, was part of the first cohort of older children to received gene therapy for Duchenne Muscular Dystrophy (DMD) at the Gene Therapy Clinic at Sidra Medicine.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/\" \/>\n<meta property=\"og:site_name\" content=\"Sidra Medicine\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/SidraMedicine\/\" \/>\n<meta property=\"article:modified_time\" content=\"2025-03-11T09:02:11+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/03\/6e3e6fb3-dsc0268.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"528\" \/>\n\t<meta property=\"og:image:height\" content=\"350\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@sidramedicine\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/\",\"url\":\"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/\",\"name\":\"Gene Therapy for Older Children with DMD - Sidra Medicine\",\"isPartOf\":{\"@id\":\"https:\/\/www.sidra.org\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/03\/6e3e6fb3-dsc0268.jpg\",\"datePublished\":\"2025-03-11T08:53:55+00:00\",\"dateModified\":\"2025-03-11T09:02:11+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/#primaryimage\",\"url\":\"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/03\/6e3e6fb3-dsc0268.jpg\",\"contentUrl\":\"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/03\/6e3e6fb3-dsc0268.jpg\",\"width\":528,\"height\":350},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.sidra.org\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Patient Stories\",\"item\":\"https:\/\/www.sidra.org\/ar\/patient_story\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Gene Therapy for Older Children with DMD\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.sidra.org\/#website\",\"url\":\"https:\/\/www.sidra.org\/\",\"name\":\"Sidra\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/www.sidra.org\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.sidra.org\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.sidra.org\/#organization\",\"name\":\"Sidra\",\"url\":\"https:\/\/www.sidra.org\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.sidra.org\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/02\/6b1dedea-sidra-logo.svg\",\"contentUrl\":\"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/02\/6b1dedea-sidra-logo.svg\",\"width\":1,\"height\":1,\"caption\":\"Sidra\"},\"image\":{\"@id\":\"https:\/\/www.sidra.org\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/SidraMedicine\/\",\"https:\/\/x.com\/sidramedicine\",\"https:\/\/www.instagram.com\/sidramedicine\/\",\"https:\/\/www.linkedin.com\/company\/sidra-medicine\/\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Gene Therapy for Older Children with DMD - Sidra Medicine","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/","og_locale":"en_US","og_type":"article","og_title":"Gene Therapy for Older Children with DMD - Sidra Medicine","og_description":"Fahad, a 10-year-old boy, was part of the first cohort of older children to received gene therapy for Duchenne Muscular Dystrophy (DMD) at the Gene Therapy Clinic at Sidra Medicine.","og_url":"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/","og_site_name":"Sidra Medicine","article_publisher":"https:\/\/www.facebook.com\/SidraMedicine\/","article_modified_time":"2025-03-11T09:02:11+00:00","og_image":[{"width":528,"height":350,"url":"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/03\/6e3e6fb3-dsc0268.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","twitter_site":"@sidramedicine","twitter_misc":{"Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/","url":"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/","name":"Gene Therapy for Older Children with DMD - Sidra Medicine","isPartOf":{"@id":"https:\/\/www.sidra.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/#primaryimage"},"image":{"@id":"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/#primaryimage"},"thumbnailUrl":"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/03\/6e3e6fb3-dsc0268.jpg","datePublished":"2025-03-11T08:53:55+00:00","dateModified":"2025-03-11T09:02:11+00:00","breadcrumb":{"@id":"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/#primaryimage","url":"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/03\/6e3e6fb3-dsc0268.jpg","contentUrl":"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/03\/6e3e6fb3-dsc0268.jpg","width":528,"height":350},{"@type":"BreadcrumbList","@id":"https:\/\/www.sidra.org\/patient_story\/gene-therapy-for-older-children-with-dmd\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.sidra.org\/"},{"@type":"ListItem","position":2,"name":"Patient Stories","item":"https:\/\/www.sidra.org\/ar\/patient_story\/"},{"@type":"ListItem","position":3,"name":"Gene Therapy for Older Children with DMD"}]},{"@type":"WebSite","@id":"https:\/\/www.sidra.org\/#website","url":"https:\/\/www.sidra.org\/","name":"Sidra","description":"","publisher":{"@id":"https:\/\/www.sidra.org\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.sidra.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/www.sidra.org\/#organization","name":"Sidra","url":"https:\/\/www.sidra.org\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.sidra.org\/#\/schema\/logo\/image\/","url":"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/02\/6b1dedea-sidra-logo.svg","contentUrl":"https:\/\/storage.googleapis.com\/sid-website-content\/2025\/02\/6b1dedea-sidra-logo.svg","width":1,"height":1,"caption":"Sidra"},"image":{"@id":"https:\/\/www.sidra.org\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/SidraMedicine\/","https:\/\/x.com\/sidramedicine","https:\/\/www.instagram.com\/sidramedicine\/","https:\/\/www.linkedin.com\/company\/sidra-medicine\/"]}]}},"lang":"en","translations":{"en":12204,"ar":12210},"pll_sync_post":[],"_links":{"self":[{"href":"https:\/\/www.sidra.org\/wp-json\/wp\/v2\/patient_story\/12204","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.sidra.org\/wp-json\/wp\/v2\/patient_story"}],"about":[{"href":"https:\/\/www.sidra.org\/wp-json\/wp\/v2\/types\/patient_story"}],"author":[{"embeddable":true,"href":"https:\/\/www.sidra.org\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.sidra.org\/wp-json\/wp\/v2\/comments?post=12204"}],"version-history":[{"count":5,"href":"https:\/\/www.sidra.org\/wp-json\/wp\/v2\/patient_story\/12204\/revisions"}],"predecessor-version":[{"id":12217,"href":"https:\/\/www.sidra.org\/wp-json\/wp\/v2\/patient_story\/12204\/revisions\/12217"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.sidra.org\/wp-json\/wp\/v2\/media\/12206"}],"wp:attachment":[{"href":"https:\/\/www.sidra.org\/wp-json\/wp\/v2\/media?parent=12204"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.sidra.org\/wp-json\/wp\/v2\/categories?post=12204"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.sidra.org\/wp-json\/wp\/v2\/tags?post=12204"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}